Thursday, February 17, 2011

Sweetness

We've been trying out new hair styles to see if we can keep that hair under control a little better.  This one actually works for the most part... and it makes her look so grown up!
Just because.... :)  
And just a little update:  We were able to get the genetic testing done on her at the end of last year, we recently got the results.  They confirmed her diagnosis, RTS, but also found the the defective gene that she has is completely unique to her, it's never been seen before.  So she's special... but we already knew that!  :)
She has been very vocal lately, which has all of us (dr. and therapist included) very hopeful about the possibility of her speaking some day.  She is making quite a few new sounds... and yes, even her sounds are cute!  hahaha.
Love her to pieces!  She is getting so big! 

5 comments:

Kim said...

I love her hair in the first pics. She is so cute! I can't believe how big she is getting.

The Clark's said...

Love her hair! I'm worried that if I had a girl I wouldn't know what to do! You might have to give me some tips if and when the time comes.

...Ashlee... said...

She is adorable! I'm with Emily, I have no idea what I'd do with a girl... I hope I get one though :)

The Hunts said...

Holy crap she is SOOOOO adorable. That last pic just melts me. Could that face be any cuter!!??? I think you're doing a great job on her hair. It's so cute...and besides, just be glad she's not from my husband's side of the family cuz all their girls are LITERALLY bald until like 3 or 4. Cross your fingers for me :)

afacer said...

Almost makes me want a girl so I can do her hair!
(BTW - I have been reading just haven't had time to comment so now you get a barage of comments from me!) :)