Her Pretties

March 23. 2014

Miss Reagan LET me paint her fingernails for the first time EVER! She calls them her "pretties" and she was super excited! :) (Obviously, so was mom!) It's so fun to do girly things with my girly!

Pink Shoe Adventures

March 2014
4 weeks with casts wasn't super fun.  Reagan couldn't go to school or PT.  While she totally mastered walking in them, they were obviously not very safe to walk in.  (The yellow socks had grippy stuff on the bottom, they helped a bit with slipping.  They also kept her little fingers away from her healing toes.)  We couldn't go to the park or really outside at all.  It was hard for her.  But we did get to have lots of lazy days at home!  :)  

She had to learn to contain her urge to swing them around, especially while playing with brothers.  Those things pack a punch!  Ouch! 

Um, this is just the sweetest picture ever so I'm throwing it in here.   :)  

They didn't slow her down too much.  Those casts are heavy, I was impressed.  

March 18th was Reagan's last day with her pink shoes! And as a bonus, we came home from the doctor's to Frozen in the mailbox! :) 

Love this girl... even when she goes bat crap crazy and destroys my house because she can climb and tip toe and run again! ;) And yes, she sat on Harrison to watch Frozen... he didn't mind until she started bouncing. hahahaha

HOORAY for healthy uncasted toes!!  And HOORAY for this sweet brother of hers who is willingly and unconditionally her best friend! :) I love it!  They are thick as thieves! They were just meant to be together, I have no doubt.  

Gettin' Her Toes Fixed

February 28, 2014
Because of her syndrome her thumbs and big toes are very broad, her poor toenails have been chronically ingrown and infected most of her life.  :(  So she FINIALLY got them fixed.  I'm so happy for her I could cry!  Poor girl has been living in chronic pain, it's so sad.  They did a partial removal of both big toe nails.  The Dr. ended up removing half an inch off of both sides of the nail and she still has a full size nail left... they were that bad!  :/  

I didn't get a before picture of her, but she was kinda nervous, she knew something was up, she's a seasoned pro.  But she was so brave! :) The surgery went well but long, it was supposed to take an hour, but ended up taking 2.  I'm not a good waiting room mama.  It stresses me out.  Luckily one of the men in our ward is a surgical nurse for her doctor and was in surgery with her, he was so nice and called the waiting room to keep me informed.  Tender mercies, I tell you.  (He was in her toe removal surgery too, we love him!)  :)  

Her new pink shoes. 3-4 weeks with casts on both feet. That should be fun... and dangerous for everyone!!  ....Yikes!  It's going to be interesting to see how long it takes her to use them as a weapon.  ;)

She usually HATES waking up after sedation, but she was very calm and loopy.   She took it all like a trooper and even smiled at the nurses as we were leaving. 

Home at last.  Dad makes everything better.  

She insisted on wearing her Minnie Mouse ears to the hospital and didn't take them off until she was sedated. haha.  They went right back on as soon as she was coherent enough to realize they weren't on anymore.  :)  She is so funny. 

She looks sad, but she was doing really well, just a little loopy still.  ;)  Love our brave girl!  

New/Updated Rooms

January 2014
It has taken me a very long time to put Grant's room together.  I have always had baby rooms done before they were born, but #4 proved to be the one that I relaxed a bit with.  :)  But it's finally (almost) done.  What I've been (slowly) up to lately:  Grants room

I love the owls!  It took HOURS to put up, but it made the room!  

I love his new bedding!!  

His door.  (The nickname was Patrick's idea.)

It's not quite done yet, but I love it so far.  :)

Reagan's room was due for an update too, she is a big girl now, so it seemed time.  :)  Of course her room is missing some little things too, but overall, it's coming along nicely!  Reagan's room.

We love polka dots!  :)

We plan to get her a wall mounted TV/DVD (she likes to watch the same movies over and over and over.) but this one works for now.  :)  

She lives in style! :) (This was her birthday present!) 

She seems to like her new setup.  And it's been fun getting to do some projects again!  :)

Miss R is 4

This beautiful girl is 4!  Some fun facts about her this year:
-She has now been walking for a year!  Woowho! 
-She is talking so much, she likes to have conversations with her imaginary friends, she "reads" books aloud, she even says prayers.  :)
-She can identify and sign her 6 basic colors and she is learning to identify her shapes.
-She has 3 therapists, (PT, OT-Feeding, Speech) that we see weekly.  She also has 3 therapists (PT, OT, Speech) at school, that she sees once a week.  She's a busy girl and a really hard worker!
-She has to have the ceiling fan on, her musical bear, her pink blanket, 3 books and Backyardigans playing on her TV on repeat in order to take a nap.
-She LOVES her big brothers!  Jackson is the one who watches out for her and lets her love on him.  Harrison is the one who will play with her or read to her for hours.  They are her best friends!  
-She might love her little brother someday.  Grant is not her favorite person, especially since he became mobile.  She likes to knock him down, sit on him, make him cry any chance she gets...  And when she gets caught sitting on him and making him scream she cleverly begins to pet his face and say "Nice".  So... it's safe to say she totally knows better.  
-She has to eat yogert every single day.
-She is a SUNBEAM is Primary!  Whaaat?!

It's been a big year!  She is changing and learning and growing like crazy! And she continues to be the giggles and sunshine in our home!  It was a tough year for her too, filled with a lot of new skills and trying to put them all to use, frustration has been common place.  And she has been in a lot of pain and had some chronic infection in her feet.  But she is Reagan, and nothing seems to slow her down.  Resilient, smart, tough, determined, hilarious, beautiful, crazy, hooligan!   We are so blessed to have her!  

We celebrated her birthday on January 12th, with our local "family" and Grandma and Papa.  :)  Her party theme was centered around one of her favorite things, ice cream!  Lots and lots of ice cream!  :) 

 Presents!  She was spoiled by all and had tons of fun opening them!  

The next day, Grandma found one more present she'd forgotten about. So she got to have a private opening, before they had to leave.  (It just so happened that this one was her favorite!  That monkey makes her laugh so hard!)  

 And then there was her actual birthday.  :)  January 15th.

She finally got a cake. (Because at her party, her dad declared it wasn't a real birthday without one... mostly because he really wanted one. haha.  Although, just for the record, she ate a LOT more ice cream than cake.) ;)

 We LOVE this girl!!  

Happy Birthday Miss!!